Hello all! Thank you for reaching out and letting me know that you have been thinking about me. I have gotten quite a few texts, messages, and cards that let me know I am cared about. I appreciate and am so grateful that I have so many folks rooting for me and sending me great energy. All of that love holds me up when I am feeling discouraged.

Well no need to worry if you haven’t heard from me, or feel discouraged. I got THE BEST news last week when I had scans. The LMD cannot be seen on the scans. Now, that doesn’t mean it’s not there hiding away for some future surprise appearance, but for now we celebrate BIG for this news. It’s basically unheard of to have that sort of response to treatment for LMD. I am 100% positive that the proton radiation therapy has had a huge impact on this outcome. Ya’ll helped make NJ/ProCure/and proton therapy happen, so thank you for helping me in this chapter of the cancer book.

My boney mets are still very much active, but aren’t causing me pain at this time. And the liver mets are “stable.” There appears to be one new one, that’s rather large, but I have had shrinkage in other liver lesions which all evens out to being “stable.” I always struggle with that term because it doesn’t mean no activity, it just means that overall there is steadiness of disease or no major progression.

All in all though, really great news on the scan front. Good to go for another 8-9 weeks unless some new symptom rears its ugly head.

I have had a few people ask me if I am doing anything for active treatment since radiation wrapped up. The reality is, I never stopped. I had one chemo infusion right before radiation, and then once I was home I continued to get regular chemo infusions two out of every three weeks.

The chemo I am currently on is called Trodelvy or sacituzumab (saci). I usually go on Thursdays for my infusions on day 1 and day 8 of a cycle then I get the last 14 days off. It doesn’t make me feel awful, which is good, but for the first 2-3 days post infusion I don’t feel great either. I don’t eat much, feel a little nauseous, deal with lower GI issues, and am VERY tired. But I have had other chemos make me feel so much worse, so I am grateful I am tolerating this so well and it seems to be holding things steady in the disease progression setting.

Oh! I forgot to mention that we got the hot tub all set up now. It’s been so helpful at relieving my pains or helping me relax. My family has also had some really special moments together, screen free, just chatting away. Again, thank you always for your assistance in the form of money, time, energy, love, rides, meals, etc.

Well that’s the news for now. You probably won’t hear from me again until the next set of scans unless something pops up. Fingers crossed that won’t be happening anytime soon. No news is good news 😉